And so keeping in tune with the year the back collapsed on me… with a slip disc I hobbled around albeit sideways while my puppy tried his best not to trip me up on stairs (unsuccessfully) and my husband worked on being the ‘perfect stick’ for me to lean on (equally unsuccessfully).
And though I was told I should rest I hobbled thru my walk ( a much shorter version though) and turned up to office and went to meetings as was scheduled. I even went to a friend’s party on Saturday and ….. hung out on the uber comfortable couch (thanks Nosh)… but I still went!
I had a friend over on Wednesday and we chatted for hours and I heated food and served it and went about hosting her like a pro, or so I’d like to think…And tonight we’re going out again… cos I’ve realised its mind over matter and pain mustn’t stop me from doing things or meeting people… because I don’t want to regret times I ‘could have had.’
And despite being called ‘a control-freak’ by some-namely Mom and Aditya, I realised that what I had was the most positive version of #FOMO.
#FOMO (the fear of missing out) is usually regarded as a negative, negative hashtag and often in our busy lives we really make fun of it and enjoy the precious silences and alone time.
But take it from me, when it becomes difficult to do something, you really miss the time it was easy. You miss choice when you don’t have any. When people wonder why I clock the time when my arm hurts ; it’s because I need to be grateful for the time it doesn’t. What I miss most about my life pre-multiple sclerosis; is waking up without any pain. But now every day I get up; I get out and make the best of it. I know that today is possibly easier than tomorrow and I’m not going to miss today.
So I love having too many invitations and try and do everything because there is no joy for me in missing out… We take too many things in our lives for granted- let’s now enjoy every moment of the ability to be able to do all the things important to us! There is true joy in that.
P.s.(Palat says)-: Don’t hate the noise and busyness … the silence is lonely.
It was a leap of faith- this was what the entire week seemed focussed on. On Tuesday I was told that in all likelihood my MRIs were false negatives and I would need to be put on to an immediate dosage of steroids! This is the first time this has happened since 2005 and naturally I was extremely worried about this. Another attack of multiple sclerosis seemed overwhelming not just for me but for my whole family. Wouldn’t I get better naturally? The pain has been worsening for over 6 months now and has been really bad for more than a few years and now I was walking like the Leaning tower of Pisa (if it could walk); so may be I should trust the good doctor’s expertise and take the leap of faith by taking treatment no matter how scary it seemed.
Sometimes you have to trust yourself and the people around you.
It seemed like I needed a bit more than faith and chocolate ice cream when the Nurse who came home couldn’t find my veins .She did try in three injection points and I held on to faith till she twisted the needle so hard it hit a nerve and I just saw black all around.
Must I actually do this? I asked Aditya as we now then decided to do this at the hospital. ‘Well, if you want to feel better, it’s the only way- ‘ he said. So the 5 days started and well I’m going to hope the pain is better and the walk a little straighter. I am going to feel better. I will. I have to.
A friend dropped in, having given up a steady job , he seemed worried about reactions around him.
He’d lost joy.
I know sometimes that (joy) seems such an elusive concept, but I do believe that we all have the power to search , nay the responsibility to find our joy. It is only when we know how to find joy can we truly live our best lives. It is only if you know how to be joyous , that you can truly inspire and give happiness. Responsibilities must be fulfilled but it should never be at the cost of joy. This world can be such an incredible place, it is up to us to find at least one thing that brings us happiness/joy every day.
I used to make that a task every day because I didn’t know how to find it! Now I do this out of habit. There’s always at least a few moments that give me absolute joy, if not more every day and it also keeps me grateful.
Just FYI it’s Masterchef and trashy TV shows that keep me happy thru the hour long injection… see even in that there can be joy.
P.s. (Palat says)-: The leap of faith can be terrifying… much like when I jumped off a plane to sky dive… but its only when you jump that you truly experience freedom and complete joy.